Autor: | Alyssa Graybeal |
Lehekülgede arv: | 280 |
Ilmumisaasta: | 2023 |
Kauba ID: | 18946313 |
One of the first books to explore the emotional landscape of living with Ehlers-Danlos syndrome from a patient’s perspective; a playful story of falling down, getting back up again, and realizing you should have gone to the hospital sooner.
When ten-year-old Alyssa is diagnosed with the rare genetic connective tissue disorder Ehlers-Danlos syndrome, she vows not to let it stop her. Unfortunately, her efforts to avoid being "too sensitive" lead her to neglect not only her health but other aspects of her life as well. Twenty years later, she’s finally forced to confront the reality of her condition head on. When she finds herself tangled in an unwieldy combination of chronic pain, a library job for which she is particularly ill-suited, and her wife’s mystifying health problems, her body starts to unravel in ways she can no longer ignore. If pushing through is not the answer, what does homecoming to her floppy body even look like?
Kauba ID: | 18946313 |
Kategooria: | Elulooraamatud, biograafiad, memuaarid |
Tootepakendite arv: | 1 tk. |
Paki suurus ja kaal (1): | 0,1 x 0,3 x 0,3 m, 0,2 kg |
Kirjastus: | Red Hen Press |
Raamatu keel: | Inglise keel |
Tüüp: | Memuaarid |
Autor: | Alyssa Graybeal |
Lehekülgede arv: | 280 |
Ilmumisaasta: | 2023 |
Toodete pildid on illustratiivsed ja näitlikud. Tootekirjelduses sisalduvad videolingid on ainult informatiivsetel eesmärkidel, seega võib neis sisalduv teave erineda tootest endast. Värvid, märkused, parameetrid, mõõtmed, suurused, funktsioonid, ja / või originaaltoodete muud omadused võivad nende tegelikust väljanägemisest erineda, seega palun tutvuge tootekirjeldustes toodud tootespetsifikatsioonidega.